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Care Partner Resources

In addition to providing in person support groups for those living with Parkinson's and care partners, there are Care Partner only Parkinson's Resources offered by both the American Parkinson Disease Association and Parkinson's Foundation. Ongoing support groups are available virtually over zoom, as well as online training courses, videos and a library of resources dedicated to care partners.

American Parkinson Disease Association
Virtual Care Partner Support Group

 

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Facilitator: Brooklyn White, APDA Program Coordinator, UAB Center of Movement Disorders

Email: bawhite@uabmc.edu

Call: 1.205.706.7320

This support group meets virtually over zoom on the first Monday evening of each month at 7pm. The group is facilitated by Brooklyn White, APDA I&R Center Coordinator. Expect a short program with educational resources for care partners - but also a time of fellowship and camaraderie to get to know others on a similar journey. To join, contact Brooklyn White with questions, and she will add you to the email reminder list and send you the zoom link prior to each meeting. 

Parkinson's Foundation 
Care Partner Resources

 

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The Parkinson's Foundation offers excellent care partner resources. In addition to many webpages, blogs and articles dedicated to supporting the Parkinson's Care Partner, they also offer a training program and several publications that you can download digitally or order printed copies.

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CARE PARTNER SUMMIT - 2024

Most recently, the Parkinson's Foundation offered a Care Partner Summit on November 2, 2024. You can review the program recording at youtube.com/watch?v=DLnxlryK5Cc 

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CARE PARTNER ONLINE COURSE
You can also attend a free, online course that is composed of many sessions related to topics for caring for Parkinson's. This session brings together health care providers and those on the PD journey with their loved one to share valuable practical and coping tips. You can register for the course at https://education.parkinson.org/community-education/carepartner 

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CARE PARTNER RESOURCES

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Care Partner Guide: A new resource designed to support Parkinson's care partners at any stage can be found in the Care Partner Guide at https://www.parkinson.org/library/books/care-partner-guide

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Care Partner Book: "Caring & Coping" is a Care Partners' Guide to Parkinson's Disease. You can download a digital copy or order a printed copy by going to: https://parkinson.org/library/books/caring-coping 

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Care Partner Fact Sheet: "Coping Skills for Care Partners" https://parkinson.org/library/fact-sheets/coping-care-partners 

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Care Partner Digital Library: Access all Parkinson's Foundation Care Partner Resources at the digital library at https://parkinson.org/resources-support/pd-library 

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